A grounded theory study exploring the participation of persons with disabilities in the Saudi Arabian culture

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dc.contributor.advisorMji, Gubelaen_ZA
dc.contributor.advisorKahonde, Callistaen_ZA
dc.contributor.advisorEide, Arneen_ZA
dc.contributor.authorMisbach, Sadiaen_ZA
dc.contributor.otherStellenbosch University. Faculty of Medicine and Health Sciences. Dept. of Global Health. Health Systems and Public Health.en_ZA
dc.date2023-01-18T13:48:18Z
dc.date2023-08-30T13:06:06Z
dc.date.accessioned2023-01-18T13:48:18Z
dc.date.accessioned2023-08-31T09:18:52Z
dc.date.available2023-01-18T13:48:18Z
dc.date.available2023-08-31T09:18:52Z
dc.date.issued2023-03
dc.descriptionThesis (PhD)--Stellenbosch University, 2023. en_ZA
dc.description.abstractENGLISH SUMMARY: This study set out to explore the ways that Saudi Arabian persons with acquired disabilities participate in society. In the context of concerns raised about value-based rehabilitation and readmissions of patients with disabilities in Saudi Arabia, suggestions have been made about harnessing indigenous knowledge to address unfulfilled needs for participation. Theoretical frameworks used to explore subjective dimensions of participation embody Western approaches, which when used in contexts other than the West such as Saudi Arabia, may not be suitable. Furthermore, rehabilitation practices have largely been underdeveloped to address the psychosocial dimensions related to participation of persons with acquired physical disabilities. This study explores an indigenous understanding of participation in everyday life to answer the research question of how participation is processed by persons with disabilities in Saudi Arabia. The study’s primary aim was to generate a substantive theory that explained the main processes involved in participation of persons with acquired disabilities in Saudi Arabia; useful for rehabilitation. The study is positioned within an indigenous interpretive paradigm using a grounded theory approach. The strengths of the interpretive indigenous grounded theory research design affirm and legitimises indigenous-based values based on Islamic religious beliefs. This project’s innovation lies in the application of key elements of indigenous research methodology scaffolded onto classical grounded theory, not found in previous studies on participation. The study was conducted at a large rehabilitation hospital in Saudi Arabia. The iterative cyclical data collection and analysis grounded theory methodology was followed. Twenty-eight persons with disabilities were interviewed, following Arab oral traditions of sharing information and lessons learnt. Three focus group discussions were held with Saudi nationals without disabilities to gain perspectives of disability. Persons with disabilities in Saudi Arabia understand participation as a process that involves their relations with others and Allah. Within the context of religious beliefs, their biographical disruption following an acquired disability, is explained as destiny. The process of overcoming is to rework their biographies within the context of religious and spiritual beliefs that provide meaning and purpose to life. Participants in the study experienced multiple tensions over time as they navigated various aspects of their life to reconstruct their identities, reinterpret participation and cultivate dignity of self. The narratives of persons with disabilities draw on their knowledge of Islamic religious beliefs, norms and expected behaviours. The Theory of Cultivating Dignity in Participation Spaces builds on the participants’ lived experiences and conceptualises a culturally embedded social process of multiple interacting transitions. The staged-transition theory describes patterns of behaviour underpinned by relational dignity, relational autonomy and interdependence for meaningful participation. The proposed theory provides a framework that demonstrate the interaction of participation, identity and dignity that can be further developed to extract active ingredients for context-based rehabilitation interventions. The study begins to inform an indigenous holistic approach to participation.en_ZA
dc.description.abstractAFRIKAANSE OPSOMMING: Hierdie studie het uiteengesit om die maniere waarop Saoedi-Arabiese persone met verworwe gestremdhede aan die samelewing deelneem, te ondersoek. In die konteks van kommer wat geopper is oor waardegebaseerde rehabilitasie en hertoelating van pasiente met gestremdhede in Saoedi-Arabie, is voorstelle gemaak oor die benutting van inheemse kennis om onvervulde behoeftes vir deelname aan te spreek. Teoretiese raamwerke wat gebruik word om subjektiewe dimensies van deelname te ondersoek, beliggaam Westerse benaderings, wat, wanneer dit in ander kontekste as die Weste soos Saoedi-Arabie gebruik word, moontlik nie geskik is nie. Rehabilitasiepraktyke is grootliks onderontwikkel om die psigososiale dimensies wat verband hou met deelname van persone met verworwe fisiese gestremdhede aan te spreek. Hierdie studie ondersoek 'n inheemse begrip van deelname aan die alledaagse lewe om die navorsingsvraag te beantwoord oor hoe deelname deur persone met gestremdhede in Saoedi-Arabie verwerk word. Die studie se primere doel was om 'n substantiewe teorie te genereer wat die hoofprosesse wat betrokke is by deelname van persone met verworwe gestremdhede in Saoedi-Arabie verduidelik het; nuttig vir rehabilitasie. Die studie is geposisioneer binne 'n inheemse interpretatiewe paradigma deur 'n gefundeerde teoriebenadering te gebruik. Die sterk punte van die interpretatiewe inheemse gefundeerde teorie-navorsingsontwerp bevestig en legitimeer inheemse-gebaseerde waardes gebaseer op Islamitiese godsdienstige oortuigings Hierdie projek se innovasie le in die toepassing van sleutelelemente van inheemse navorsingsmetodologie wat op klassieke gegronde teorie steier, wat nie in vorige studies oor partisipasie gevind is nie. Die studie is by 'n groot rehabilitasiehospitaal in Saoedi-Arabie gedoen. Die iteratiewe sikliese data-insameling en -analise-gegronde teoriemetodologie is gevolg. Agt-en-twintig persone met gestremdhede het onderhoude gevoer, volgens Arabiese mondelinge tradisies om inligting en lesse wat geleer is, te deel. Drie fokusgroepbesprekings is met Saoedi-burgers sonder gestremdhede gehou om perspektiewe van gestremdheid te verkry. Persone met gestremdhede in Saoedi-Arabie verstaan deelname as 'n proses wat hul verhoudings met ander en Allah behels. Binne die konteks van godsdienstige oortuigings word hul biografiese ontwrigting, na aanleiding van 'n verworwe gestremdheid, as bestemming verklaar. Die proses van oorkoming is om hul biografiee te herwerk binne die konteks van godsdienstige en geestelike oortuigings wat betekenis en doel aan die lewe bied. Deelnemers aan die studie ervaar verskeie spanninge oor tyd terwyl hulle verskeie aspekte van hul lewe navigeer om hul identiteit te rekonstrueer, deelname te herinterpreteer en waardigheid van die self te kweek. Die narratiewe van persone met gestremdhede maak gebruik van hul kennis van Islamitiese godsdiensoortuigings, norme en verwagte gedrag. Die Teorie van die Verbouing van Waardigheid in Deelnameruimtes bou op die deelnemers se geleefde ervarings en konseptualiseer 'n kultureel ingebedde sosiale proses van veelvuldige interaksie oorgange. Die fase-oorgangteorie beskryf gedragspatrone wat onderle word deur relasionele waardigheid, relasionele outonomie en interafhanklikheid vir betekenisvolle deelname. Die voorgestelde teorie verskaf 'n raamwerk wat die interaksie van deelname, identiteit en waardigheid demonstreer wat verder ontwikkel kan word om aktiewe bestanddele vir konteksgebaseerde rehabilitasie-intervensies te onttrek. Die studie begin om 'n inheemse holistiese benadering tot deelname in te lig.af_ZA
dc.description.versionDoctorate
dc.embargo.terms2023-07-18
dc.formatapplication/pdfen_ZA
dc.format.extent306 pages : illustrations, includes annexures
dc.identifier.urihttps://scholar.sun.ac.za/handle/10019.1/128490
dc.languageen_ZAen_ZA
dc.publisherStellenbosch : Stellenbosch University
dc.rights.holderStellenbosch University
dc.subject.lcshPeople with disabilities -- Social conditionsen_ZA
dc.subject.lcshSociology of disabilityen_ZA
dc.subject.lcshPeople with disabilities -- Citizen participationen_ZA
dc.subject.lcshPeople with disabilities -- Rehabilitationen_ZA
dc.subject.lcshPeople with disabilities -- Services foren_ZA
dc.subject.nameUCTD
dc.titleA grounded theory study exploring the participation of persons with disabilities in the Saudi Arabian culture en_ZA
dc.typeThesisen_ZA
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