Daily activities, participation, satisfaction, and functional mobility of adults with cerebral palsy more than 25 years after selective dorsal rhizotomy: a long-term follow-up during adulthood

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dc.contributor.authorVeerbeek, Berendina E.en_ZA
dc.contributor.authorLamberts, Robert P.en_ZA
dc.contributor.authorFieggen, A. Grahamen_ZA
dc.contributor.authorVerkoeijen, Peter P. J. L.en_ZA
dc.contributor.authorLangerak, Nelleke G.en_ZA
dc.date.accessioned2022-06-29T09:15:01Zen_ZA
dc.date.available2022-06-29T09:15:01Zen_ZA
dc.date.issued2019-12en_ZA
dc.descriptionCITATION: Berendina E. et al. 2021. Daily activities, participation, satisfaction, and functional mobility of adults with cerebral palsy more than 25 years after selective dorsal rhizotomy: a long-term follow-up during adulthood. Disability and Rehabilitation, 43(15):2191-2199, doi:10.1080/09638288.2019.1695001en_ZA
dc.descriptionThe original publication is available at http://www.tandfonline.com/toc/idre20/currenten_ZA
dc.description.abstractPurpose: To determine changes in level of accomplishment and satisfaction in daily activities and social participation, and functional mobility in adults with cerebral palsy (CP) more than 25 years after selective dorsal rhizotomy (SDR). Materials and methods: This long-term observational nine-year follow-up study included 26 adults (median age 35 years) with CP and spastic diplegia, and 26 matched typically developing adults. Assessment tools used were the Life-Habits questionnaire and the Functional Mobility Scale. Results: Most of the adults with CP were independent and satisfied with accomplishing life habits and no changes were determined, except for a small change in the Housing accomplishment level. Compared to typically developing adults, the CP cohort was more dependent in accomplishing Mobility and Recreation. However, the level of satisfaction was similar for most life habits except for Mobility. Functional mobility did not change, but correlated with Life-Habits results. Conclusions: Adults with CP showed high and stable levels of accomplishment and satisfaction in daily activities and social participation more than 25 years after SDR. This is in contrast with the literature, where functional decline was shown for individuals with CP as they age. The relation with functional mobility highlights the importance to focus the rehabilitation on maintaining walking ability in order to enable high level of daily activities and social participation in adults with CP. Implications for rehabilitation: Selective dorsal rhizotomy (SDR) is a valuable treatment option for a selective group of children with cerebral palsy (CP) in order to reduce spasticity. The long-term outcomes of SDR on level of accomplishment and satisfaction in daily activities and social participation as well functional mobility in adults with CP are not clear. More than 25 years after SDR adults with CP experienced stable and lasting high levels of functioning regarding daily activities and social participation and were satisfied with the way they accomplished life habits. Functional mobility was correlated to level of accomplishment and satisfaction in daily activities and social participation, which highlights the importance to focus rehabilitation programs on maintaining functional mobility in order to enable daily activities and social participation in adults with CP.en_ZA
dc.description.urihttps://www.tandfonline.com/doi/full/10.1080/09638288.2019.1695001en_ZA
dc.description.versionPublishers versionen_ZA
dc.format.extent9 pagesen_ZA
dc.identifier.citationBerendina E. et al. 2021. Daily activities, participation, satisfaction, and functional mobility of adults with cerebral palsy more than 25 years after selective dorsal rhizotomy: a long-term follow-up during adulthood. Disability and Rehabilitation, 43(15):2191-2199. doi:10.1080/09638288.2019.1695001en_ZA
dc.identifier.issn1464-5165 (online)en_ZA
dc.identifier.issn0963-8288 (print)en_ZA
dc.identifier.otherdoi:10.1080/09638288.2019.1695001en_ZA
dc.identifier.urihttp://hdl.handle.net/10019.1/125429en_ZA
dc.language.isoen_ZAen_ZA
dc.publisherTaylor and Francisen_ZA
dc.rights.holderAuthors retain copyrighten_ZA
dc.subjectCerebral palsyen_ZA
dc.subjectRhizotomyen_ZA
dc.subjectOlder people -- Orientation and mobilityen_ZA
dc.subjectSocial participationen_ZA
dc.subjectMobility limitationen_ZA
dc.subjectPeople with disabilities -- Orientation and mobilityen_ZA
dc.titleDaily activities, participation, satisfaction, and functional mobility of adults with cerebral palsy more than 25 years after selective dorsal rhizotomy: a long-term follow-up during adulthooden_ZA
dc.typeArticleen_ZA
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