Browsing by Author "Carew, Mark T."
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- ItemExploring partnerships between Academia and Disabled Persons’ Organisations : lessons learned from collaborative research in Africa(Institute of Development Studies, 2019) Kett, Maria; Carew, Mark T.; Asiimwe, John-Bosco; Bwalya, Richard; Gitonga, Anderson; Nyehn, Boakai A.; Olenja, Joyce; Swartz, Leslie; Groce, NoraENGLISH ABSTRACT: In this article, we discuss how our academic research on disability and international development in five African countries has benefited hugely from active collaboration with advocates, practitioners, and policymakers, ultimately ensuring that research evidence is used to inform policy and practice. Whilst building such partnerships is seen as good practice, it is particularly important when working on disability issues, as the clarion call of the disability movement, ‘nothing about us without us’, attests. This is not just a slogan. Without the active and critical engagement of disabled people – as researchers, participants, advocates – the evidence gathered would not have the same impact. This article discusses experiences from research in Liberia, Kenya, Uganda, Sierra Leone, and Zambia. It highlights the challenges and opportunities such partnerships can bring in achieving the goals of leaving no one behind and doing nothing without the active engagement and inclusion of persons with disabilities.
- ItemThe meaning of participation : reflections on our study(Palgrave Macmillan, Cham, 2021) Hunt, Xanthe; Swartz, Leslie, 1955-; Braathen, Stine Hellum; Carew, Mark T.; Chiwaula, Mussa; Rohleder, PoulIn Chapter 1 we provided a discussion of participatory research as a method for doing research, and provided an outline of what we did in the research project upon which this book is based. In this final chapter, we reflect back on our experiences of doing a participatory research project of this kind.
- ItemPredictors of negative beliefs toward the sexual rights and perceived sexual healthcare needs of people with physical disabilities in South Africa(Taylor and Francis, 2019-05) Carew, Mark T.; Braathen, Stine Hellum; Hunt, Xanthe; Swartz, Leslie; Rohleder, PoulBackground: Although sexuality is a ubiquitous human need, recent empirical research has shown that people without disabilities attribute fewer sexual rights and perceive sexual healthcare to benefit fewer people with disabilities, compared to non-disabled people. Within a global context, such misperceptions have tangible, deleterious consequences for people with disabilities (e.g., exclusion from sexual healthcare), creating an urgent need for effective strategies to change misperceptions. Methods: To lay the groundwork for developing such strategies, we examined predictors of the recognition of sexual rights of people with physical disabilities within the South African context, derived from three key social psychological literatures (prejudice, social dominance orientation and intergroup contact), as well as the relationship between sexual rights and beliefs about sexual healthcare. Data were obtained through a cross-sectional survey, given to non-disabled South Africans (N = 1989). Results: Findings indicated that lack of recognition of the sexual rights for physically disabled people predicted less positive beliefs about the benefits of sexual healthcare. In turn, high levels of prejudice (both cognitive and affective) toward disabled sexuality predicted less recognition of their sexual rights, while prejudice (both forms) was predicted by prior contact with disabled people and possessing a social dominance orientation (cognitive prejudice only). Evidence was also obtained for an indirect relationship of contact and social dominance orientation on sexual healthcare beliefs through prejudice, although these effects were extremely small. Conclusion: Results are discussed in terms of their implications for rehabilitation, as well as national-level strategies to tackle negative perceptions of disabled sexuality, particularly in contexts affected by HIV.
- ItemThe sexual lives of people with disabilities within low- and middle-income countries : a scoping study of studies published in English(Taylor & Francis Open, 2017-07-05) Carew, Mark T.; Braathen, Stine Hellum; Swartz, Leslie; Hunt, Xanthe; Rohleder, PoulBackground: Although approximately 80% of the global population of people with disabilities reside in low- and middle-income countries (LMICs), very little is known about their sexual lives due to a lack of empirical data. We aimed to provide a scoping review of English- language research conducted on disability and sexuality in LMICs. Objective: Our research questions concerned what topics in disability and sexuality have (and have not) been investigated, where this research has been carried out, and how this research has been conducted. Methods: A scoping review was conducted to examine the published English-language research literature on disability and sexuality within LMICs. We searched three electronic databases (PsycINFO, Web of Science, and PsycARTICLES) for research meeting these criteria published between 2000 and 2016 (inclusive). Through this search, we identified 103 articles. Results: It is concluded that: (a) disability and sexuality research in African countries has focused predominantly on sexual abuse and violence or HIV, (b) the sexuality of people with disabilities within many LMICs has received little or no empirical investigation, and (c) there have been very few experimental studies on disability and sexuality conducted in LMICs in general. Conclusions: Much remains unknown about the sexual health and sexual lives of the majority of people with disabilities, globally. Moreover, what has been done in certain contexts has tended to focus predominantly on vulnerabilities rather than emancipatory practices. Thus, urgent action is needed within LMICs on is
- ItemSome background, and a South African study on sexuality(Palgrave Macmillan, Cham, 2021) Hunt, Xanthe; Swartz, Leslie; Braathen, Stine Hellum; Carew, Mark T.; Chiwaula, Mussa; Rohleder, PoulENGLISH ABSTRACT: In this chapter, we introduce central concepts and theories relevant to thinking about disability and sexuality in the global South. We discuss what we mean by physical disability, sexuality, gender, and embodiment, and provide a brief description of the research study on which this book is based. Here, too, we provide a rationale and outline for the book.