Browsing by Author "Bester, Nena"

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    The communication experiences of young adult stroke survivors with stroke-related communication difficulties
    (Stellenbosch : Stellenbosch University, 2024-03) Bester, Nena; De Beer, Alida; Bardien, Faeza; Stellenbosch University. Faculty of Medicine and Health Sciences. Dept. of Health & Rehabilitation Sciences. Speech-Language and Hearing Therapy.
    ENGLISH SUMMARY: Background: The rising incidence of stroke among young adults has led to a growing population of survivors experiencing communication difficulties. Existing research highlights their frustration and feelings of invisibility, indicating a lack of acknowledgement of their unique needs in rehabilitation. This study employs the International Classification of Functioning, Disability, and Health (ICF) as a holistic framework to explore the significant impact of stroke-related communication difficulties on young adults. Research aim: The aim was to describe the communication experiences of young adult stroke survivors with mild to moderate stroke-related communication difficulties who attended a public healthcare facility for speech-language therapy services in the Western Cape. The objective was to obtain information about the participants’ 1) communication experiences, 2) communication rehabilitation experiences, 3) communication needs and 4) areas to consider in their communication rehabilitation. Methods: The study employed a cross-sectional, descriptive phenomenological design. The sample of five young adults, who ranged in age from 26 to 49 years was selected through purposive homogeneous sampling from three different healthcare facilities. Males and females were included with various communication difficulties and comorbid stroke symptoms represented. An interview guide was used for data collection via semi-structured interviews. Thematic analysis based on descriptive phenomenology was used as the data analysis approach. Findings: The data analysis yielded five main themes describing the experiences of these five young adult with stroke-related communication difficulties. The first two themes emphasize emotions they experienced in relation to communication difficulties as well as adaptation to these difficulties, aligning with the holistic perspective of the ICF. The third theme addresses intrinsic factors to consider when addressing communication difficulties in this population, relating to the ICF’s focus on personal factors. Subthemes related to this theme include awareness of their communication difficulties, insight related to the impact of these difficulties, help-seeking behaviour, physical abilities, and alternative and augmentative communication (AAC). AAC emerged as a notable coping strategy, highlighting the multifaceted nature of personal factors influencing its successful implementation. Beyond personal aspects, three subthemes related to the environment shaped the participants’ experiences, aligning with the ICF’s consideration of environmental factors. These include the environment's impact on participation, communication partners’ needs, and their influence on the independence of young adults with stroke-related communication difficulties. Lastly, the research findings illustrate the need for speech-language therapists (SLTs) to integrate the principles of the ICF into their approach to management of young adult stroke survivors with stroke-related communication difficulties. Considering both personal and environmental factors in training, feedback, and support is vital for facilitating participation in communication for young adult stroke survivors with communication difficulties. Conclusion: By exploring emotional aspects, personal factors, environmental influences, and the contribution of SLTs, it is possible to develop more nuanced and personalised rehabilitation strategies for young adults with stroke-related communication difficulties. Aligned with the principles of the ICF, such strategies hold the potential to enhance the quality of life, communication, and communication rehabilitation experiences for young adults with stroke-related communication difficulties.